A myriad of ethical issues surround
health promotion, disease prevention and research as related to public
health. For example, two ethical
challenges involve the role of government in health promotion and disease prevention
as well as human subjects protection as they pertain to the public health
research agenda. According to Callahan and Jennings (2002), public health has dual
obligations to the government (which regulates it) and the public (that it
serves). This dichotomy creates special
ethical problems for the public health profession. For example, laws such as
immunization and seat belt requirements have an explicit normative element:
Callahan and Jennings
claim that these regulations promote and protect the lives of citizens. The
trick is balancing the paternalistic interests of the state with the
libertarian notion of freedom.
While
government interference in the health of its citizenry might at first glance be
deemed a positive policy, that is not always the case. For example, consider
the eugenics sterilization program in America . According to the documentary "The
Lynchburg Story," between 1905 and 1972 over 70,000 Americans were
forcibly sterilized because the state deemed them unfit to reproduce. Not all of these victims were cognitively challenged,
rather some were just poor. When discussing governmental human rights
violations and health, Farmer (1999) made the following comment, "Social
inequalities based on race or ethnicity, gender, religious creed, and – above
all – social class are the motive force behind most human rights violations. In
other words, violence against individuals is usually embedded in entrenched
structural violence" (p. 1488). Thus a key ethical problem in the public
health system remains ensuring the rights of disenfranchised groups.
Human
rights violations, especially with marginalized groups such as those in Lynchburg or Tuskegee , provide the
main rationale for governmental oversight of all research involving human
subjects. This oversight generally
follows a biomedical model a model that stringently regulates research. For example, clinical drug trials require
absolute voluntary cooperation and informed consent of research subjects.
Participants must be aware of their rights as well as risks and benefits of this
study. However, many research interests in public health do not involve
invasive procedures. As such, it may be useful to relax research protocols in
public health research that deals with large populations or communities. For
instance, at ETSU, administrative oversight of research is divided into a
campus and medical Institutional Review Board (IRB). This division allows
research that is oriented socially and behaviorally, particularly
non-manipulative studies, to qualify for exemption from full review.
References
Callahan, D., & Jennings , B. (2002).
Ethics and public health: Forging a strong relationship.
American Journal of Public Health, 92(2),
169-176.
Eadie, B. (Producer), &
Trombley, S. (1994). The Lynchburg Story
[Motion picture]. U.S. :
Worldview Pictures
Production.
Farmer, P. (1999). Pathologies of
power: Rethinking health and human rights. American
Journal
of Public Health, 89(10), 1486-1496.
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